Top tips for people with eczema & psoriasis

When you’re chronically ill, an autoimmune condition like psoriasis can seem like one condition to many, just one more thing to deal with.  I have psoriasis largely on my scalp, and have gone as far as shaving my head to ease the hassle of dealing with it.  There are still days when I long to grab the hair clippers.  Still, there are plenty of ways to help deal with skin conditions, if you can find a way to work them into your daily routine. Grab all the cream! Even something as lightweight as aqueous cream can help enormously when used […]

Continue reading →

#EDSchat twitter chat ~ Monday 28th November

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

Continue reading →

#EDSchat twitter chat ~ Monday 7th November

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

Continue reading →

I’m Not Superstitious….But My Laptop Is

The world can be a funny place.  When I had an appointment sent through to me to see my Rheumatologist on Fridat 13th of January…I changed my appointment.  I’m not superstitious, but neither do I like to tempt fate.  This same almost…nearly superstitious nook of my brain had me sat typing furiously just a few days ago saying, “I think…It’s just…I’m not saying anything! DON’T YOU SAY ANYTHING!” to husband, as I worked furiously to try and get a few things off my very quickly dying laptop before it stopped raging against the dying of the light, and went to […]

Continue reading →

#EDSchat twitter chat ~ Monday 31st October

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

Continue reading →

#EDSchat twitter chat ~ Monday 24th October

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

Continue reading →

#EDSchat twitter chat ~ Monday 17th October

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

Continue reading →

#EDSchat twitter chat ~ Monday 3rd October

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

Continue reading →

#EDSchat twitter chat ~ Monday 26th September

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders.  Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. We […]

Continue reading →

#EDSchat twitter chat ~ Monday 19th September

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders.  Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. We […]

Continue reading →