I’m Not Superstitious….But My Laptop Is

The world can be a funny place.  When I had an appointment sent through to me to see my Rheumatologist on Fridat 13th of January…I changed my appointment.  I’m not superstitious, but neither do I like to tempt fate.  This same almost…nearly superstitious nook of my brain had me sat typing furiously just a few days ago saying, “I think…It’s just…I’m not saying anything! DON’T YOU SAY ANYTHING!” to husband, as I worked furiously to try and get a few things off my very quickly dying laptop before it stopped raging against the dying of the light, and went to […]

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#EDSchat twitter chat ~ Monday 31st October

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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An end to fireworks

This was going to be another post about my health, because lots of shit is going down atm with my body and brain, but I thought I’d give you a break and have a rant instead.  I’m going to start by saying that I feel really great.  I am not writing this post because I am in a bad mood, but because I have had my favourite season (Autumn, obvs, closely followed by spring) marred by fireworks, and I’m not the only one. For me personally, fireworks have negative connotation due to a bad experience one bonfire night.  I can […]

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#EDSchat twitter chat ~ Monday 24th October

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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Antidepressants: the saga begins

I remember when I first started taking antidepressants.  It was perhaps 15 years ago after I’d had my first child at just 17.  I was vilified for being a teenage mum, and for a multitude of reasons (including attitudes towards this Mum still in braces, by the medical staff of all people) believed that because I felt the way I did, I was failing as a mother.  It was in fact post natal depression.  Not my first dance with depression, which haunted me all my teenage years, even before my son came along.  I saw my doctor when my son […]

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#EDSchat twitter chat ~ Monday 17th October

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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Talking Shit: IBS

Today I’m going to be talking shit, or poo if you prefer.  Not the first conversation topic you’d reach for necessarily, but one that definitely needs to be spoken about more, once we’re done talking about the weather that is.  The matter on my mind is actually IBS, Irritable Bowel Syndrome, which is so much more than just poo. According to the NHS website, the main symptoms are: abdominal (stomach) pain and cramping, which may be relieved by having a poo a change in your bowel habits – such as diarrhoea, constipation, or sometimes both bloating and swelling of your stomach excessive wind (flatulence) occasionally […]

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Captains log: I love Star Trek!

Suffering with severe blogger block, I have sat and tried and tried to write a post that is coherent and fun to read…so far to no avial.  In between I have been on twitter (because that’s where all the cool people are) and talking about things I love, one of which is Star Trek! When I was in my early teens in the mid nineties, my parents would watch Star Trek The Next Generation on Sky 1 every weekday.  Despite being school nights, I would beg to be allowed to stay up and watch the adventures of Captain Jean-Luc Picard, […]

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#EDSchat twitter chat ~ Monday 3rd October

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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Accessible Travel By Car

I know that I have blogged before about just how lost I’d be without my car.  Given the energy and the time, I enjoy driving my adapted vehicle all over the country, with strategic stops along the way.  Here is a fantastic infographic on some fantastic accessible places to travel to all over the country. Right now I lease my accessible vehicle, but when the lease is up, I shall be looking at used mobility vehicles to look at the best way to keep me on the road, enjoying the fruits our country has to offer. What are your experiences of […]

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