#EDSchat twitter chat ~ Monday 26th September


#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders.  Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. We are very friendly group of people, and would love to have you in the herd.

When is it?

We are having two rounds of #EDSchat each Monday, one ostensibly for those on GMT, and another for those over the pond.  The times will be as follows:

UK and daytime chat

8pm GMT (12pm EST 2pm PST 3pm CST)

US, Canada and night owls chat

8pm EST (11pm PST 5pm CST 1am GMT)


What is EDS?

EDS is a connective tissue disorder that comes in seven sub types:

For more information please visit EDS UK

In our second week, we will be taking it an little easy and will leave plenty of time for people to introduce themselves and start getting to know each other, but we will have some prompting questions (following the usual structure of a twitter chat) to keep things flowing.

Due to the sudden shift from Summer to Autumn that we have seen in the last couple of weeks, particularly in the UK, I wanted to tackle weather and it’s impact upon our wellbeing.  Tania from When Tania Talks and creator of #SpoonieSpeak kindly let me borrow the questions from this weeks #SpoonieSpeak, as I really didn’t think I could beat them for relevance for anyone with chronic illness and disability.

Q1. Does weather affect your condition(s)? If so, how?

Q2. Have you found anything that reduces the effects of weather on your condition(s)?
Q3. How do you manage (rather than reduce) your weather related symptoms?
Q4. Sometimes, the effect weather has on our physical health can affect us emotionally. Do you do anything to minimise this?

If you have any suggestions for future chats, questions or comments, please do feel free to comment below.

We look forward to seeing you there, at @EDSchat.  Remember to use the hashtag #EDSchat before, during and after the scheduled sessions when talking about EDSchat, so we can all find each other and see your comments.


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