#EDSchat twitter chat ~ Monday 26th September

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders.  Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. We […]

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#EDSchat twitter chat ~ Monday 19th September

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders.  Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. We […]

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Finding Dory: Finding Myself

As much as I adored Finding Nemo, when I heard there was a sequel out I had the usual pessimistic thoughts that involve hating on Disneys capitalist greed (with sequels and merchandise firmly at the helm), but whatever ‘corporate Disneys’ reasons for releasing the film, it really is a gem! Contains *spoilers* For those of you who’ve watched Finding Nemo, you’ll know that Dory is a lovable if scatty fish (she is a blue tang) voiced by Ellen Degereres.  In Finding Nemo she is an entertaining and supportive sidekick who helps Nemo eventually get back to his father. Diving into […]

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Wheelchairs vs. Buggies: The Big Debate

If you’ve clicked into this post, I’m guessing you have a fair idea of what it’s going to be about.  A good deal of buses (particularly in the capital but not nearly enough in more rural areas where they’re needed most) have a space with no seats which was hard won by disabled rights campaigners.  This space is meant specifically for wheelchair users.  Much like the coveted disabled parking space, it has since been used as a convenient storage spot for luggage, scooters, and most of all – buggies! The law as it stands… Wheelchair users have priority use of the space […]

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Me Before You: My Thoughts

Okay, so this is happening.  I am actually sitting down to write a post about the movie ‘Me Before You’ based on the book by Jojo Moyes.  What you have heard about the movie, and the opinions you have formed on both, will be largely influenced by your relationship too, or within the disability community.  What I am not going to do is write a very accurate and detailed dissection of all of the issues raised by this book and subsequent movie.  Many have done it better than me and I highly suggest you check out these pieces by Emily Ladau, Kim […]

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Here Comes The Summer

It’s a beautifully sunny Monday afternoon.  I have 2 hours to myself, as I’ve just dropped the husband off for an appointment and need to hang around for a while to wait for him.  I’m in Farnham, a quaint little Hampshire town with pavement cafes, green spaces and plenty to do on a sunny day.  In fact a brief wheel into town has revealed said pavement cafes, green spaces etc to be thronged with local inhabitants enjoying a glass of something cold, a chat with a friend and the warmth of the sun on their backs.  So why, other than […]

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Asking for help: Miscarriage Heartbreak

CW: miscarriage I’ve written this blog post a dozen times, and a dozen more in my head, thinking of what to say and how to say it.  My content/trigger warning will have given the game away somewhat, but it is so much more than any one word can describe.  Last year saw heartbreak when after 4 years of trying, we lost our baby.  We decided to chase the loss with hope, and started trying again as soon as it was medically advisable.  We were lucky and conceived quickly, in January. We counted the days.  I was super careful and wouldn’t […]

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Growing up different: bullying & ableism

Content warning: bullying Recently, I’ve had the privilege of meeting and getting to know lots of new people who identify as disabled.  It’s part of a fun and ongoing story and I promise you will hear much more about it later.  The individuals I have met are open and honest, and as well as learning lots about them, I have learned a lot about myself.  Some good, some bad, and some just plain fact.  I’m one of those people who can chew information round and round in my head, and it only really makes sense when I say it out […]

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Shattering stereotypes and #breakingbarriers

Although I am getting on a bit (or so my roots tell me) I would not quite consider myself elderly just yet.  I do however have quite a lot in common with the elderly, and I’m not just talking my ‘Amy Farrah Fowler’ granny chic and fondness for prunes (they really are sooo good!).  Speaking of The Big Bang Theory, here’s the science bit.  I promise it is short, painless, and those who read will be rewarded with chocolate. Most people, when they hear the word ‘disabled’ think of the medical model, which states that people are ‘disabled’ by their impairments or […]

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