#EDSchat twitter chat ~ Monday 24th October

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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Antidepressants: the saga begins

I remember when I first started taking antidepressants.  It was perhaps 15 years ago after I’d had my first child at just 17.  I was vilified for being a teenage mum, and for a multitude of reasons (including attitudes towards this Mum still in braces, by the medical staff of all people) believed that because I felt the way I did, I was failing as a mother.  It was in fact post natal depression.  Not my first dance with depression, which haunted me all my teenage years, even before my son came along.  I saw my doctor when my son […]

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#EDSchat twitter chat ~ Monday 17th October

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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Talking Shit: IBS

Today I’m going to be talking shit, or poo if you prefer.  Not the first conversation topic you’d reach for necessarily, but one that definitely needs to be spoken about more, once we’re done talking about the weather that is.  The matter on my mind is actually IBS, Irritable Bowel Syndrome, which is so much more than just poo. According to the NHS website, the main symptoms are: abdominal (stomach) pain and cramping, which may be relieved by having a poo a change in your bowel habits – such as diarrhoea, constipation, or sometimes both bloating and swelling of your stomach excessive wind (flatulence) occasionally […]

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#EDSchat twitter chat ~ Monday 3rd October

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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Accessible Travel By Car

I know that I have blogged before about just how lost I’d be without my car.  Given the energy and the time, I enjoy driving my adapted vehicle all over the country, with strategic stops along the way.  Here is a fantastic infographic on some fantastic accessible places to travel to all over the country. Right now I lease my accessible vehicle, but when the lease is up, I shall be looking at used mobility vehicles to look at the best way to keep me on the road, enjoying the fruits our country has to offer. What are your experiences of […]

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#EDSchat twitter chat ~ Monday 26th September

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders.  Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. We […]

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#EDSchat twitter chat ~ Monday 19th September

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders.  Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. We […]

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Finding Dory: Finding Myself

As much as I adored Finding Nemo, when I heard there was a sequel out I had the usual pessimistic thoughts that involve hating on Disneys capitalist greed (with sequels and merchandise firmly at the helm), but whatever ‘corporate Disneys’ reasons for releasing the film, it really is a gem! Contains *spoilers* For those of you who’ve watched Finding Nemo, you’ll know that Dory is a lovable if scatty fish (she is a blue tang) voiced by Ellen Degereres.  In Finding Nemo she is an entertaining and supportive sidekick who helps Nemo eventually get back to his father. Diving into […]

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