#EDSchat twitter chat ~ Monday 28th November

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#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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Susan Boyle & The Portrayal of Autism in the Media

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Most of us have heard of Susan Boyle.  She stunned audiences everywhere on Britain’s Got Talent when she came on stage looking a little disheveled, and blew us all away with her amazing operatic voice.  Not confirming to societies ideas of how a person should look or act, she’s taken a lot of stick in the 7 years since her performance of ‘I Dreamed a Dream’ on the ITV show.  Soon after the show and before she went on to start her very successful singing career, it was reported that she had checked into The Priory as she was “missing […]

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Antidepressants: the saga ends

Insomnia

Yes I know that was quick, but it’s too late to rethink my use of the word saga, so what are you going to do?  I wrote a piece about antidepressants around a month ago, which would be worth reading if you haven’t already.  After 15 years on one pill of another, I decided to give them the push, and see how life was without them. After the initial withdrawal symptoms, I felt fantastic!  I had more energy, I wanted to do things, and talk to people and I felt amazing.  My sex drive came back and I’m not embarrassed […]

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Husband as caregiver

Open-Leg-Rocker

My husband is first and foremost my husband, but also my carer, caregiver, personal assistant ad infinitum.  Actually, when I introduce him to people and clarify his role, it is usually as “ma bitch”. He does shit for me. He does the shit for me that I can’t do. He helps me with the chronic illness stuff and he gets me out in the world, something which I am no longer able to do on my own. *Everything* I have read about being a caregiver is depressing.  Maybe I’m not reading the right stuff, I don’t know.  This article by […]

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#EDSchat twitter chat ~ Monday 7th November

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#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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PTSD Live!

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Trigger warning: Rape, suicide  *GRAPHIC* I don’t want to remember, remember… For me, this is the most terrifying night of the year.  For anyone who hasn’t read my recent fireworks post, it might be a good idea to do that first, unless you’re here for the juicy stuff. I was raped.  Like so many other women I have spoken to, I’ve had the experience of having my skirt pulled up and rough hands pushed inside me against my will. I was drunk and he was friendly, at first.  I was 13, and out in a short dress.  Asking for it […]

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You’re Too Fat, It’s Time To Lose Weight

Sultry swimwear

 I’ve always been ‘big’. Even as a size 12 (which used to be a goal, and is now considered huge) bulimic 14 year old, who would pass out at school because she hadn’t eaten; was embarrassed to be seen eating (another story for another day). I was called fat, and all the other permutations of what I then believed to be a slur.  Fat it not a slur, it is a descriptor.  I am fat.  I have fat.  I have friends and we are fat.  Call me fat 20 years later and I’ll say, “yeah, no shit”!  I am proud […]

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I’m Not Superstitious….But My Laptop Is

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The world can be a funny place.  When I had an appointment sent through to me to see my Rheumatologist on Fridat 13th of January…I changed my appointment.  I’m not superstitious, but neither do I like to tempt fate.  This same almost…nearly superstitious nook of my brain had me sat typing furiously just a few days ago saying, “I think…It’s just…I’m not saying anything! DON’T YOU SAY ANYTHING!” to husband, as I worked furiously to try and get a few things off my very quickly dying laptop before it stopped raging against the dying of the light, and went to […]

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#EDSchat twitter chat ~ Monday 31st October

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#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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An end to fireworks

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This was going to be another post about my health, because lots of shit is going down atm with my body and brain, but I thought I’d give you a break and have a rant instead.  I’m going to start by saying that I feel really great.  I am not writing this post because I am in a bad mood, but because I have had my favourite season (Autumn, obvs, closely followed by spring) marred by fireworks, and I’m not the only one. For me personally, fireworks have negative connotation due to a bad experience one bonfire night.  I can […]

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