A Rheum with a clue – rheumatology referral

Today I had an appointment with the infamous Dr Kazkaz at the University College hospital London on the Euston road.  I was super nervous as I hadn’t traveled to London for some time and the hospital was completely new to me.  Reaching out on facebook saved my life as friends talked me through the journey and what to expect when I reached the hospital and got inside.  It calmed me so much, although I was still so anxious I hadn’t really given the appointment much thought at all – I was just worried about getting there! Having a bunch of firm […]

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IBS and the magic toilet

Okay, so I’ve been away for a hot minute, but I have so much to tell you I don’t even know where to start! Well, you know how much I like to talk shit, so I’ll put my best foot forward and begin with that.  IBS is a great leveler. I mean, when you’ve sharted on a train your hubris just has to turn to humorous, or you’ll make yourself sick with worry – and I don’t mean that as a turn of phrase.  Anxiety over what your digestive system is going to throw at you on any given day can make […]

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Top tips for people with eczema & psoriasis

When you’re chronically ill, an autoimmune condition like psoriasis can seem like one condition to many, just one more thing to deal with.  I have psoriasis largely on my scalp, and have gone as far as shaving my head to ease the hassle of dealing with it.  There are still days when I long to grab the hair clippers.  Still, there are plenty of ways to help deal with skin conditions, if you can find a way to work them into your daily routine. Grab all the cream! Even something as lightweight as aqueous cream can help enormously when used […]

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#EDSchat twitter chat ~ Monday 28th November

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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Susan Boyle & The Portrayal of Autism in the Media

Most of us have heard of Susan Boyle.  She stunned audiences everywhere on Britain’s Got Talent when she came on stage looking a little disheveled, and blew us all away with her amazing operatic voice.  Not confirming to societies ideas of how a person should look or act, she’s taken a lot of stick in the 7 years since her performance of ‘I Dreamed a Dream’ on the ITV show.  Soon after the show and before she went on to start her very successful singing career, it was reported that she had checked into The Priory as she was “missing […]

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Antidepressants: the saga ends

Yes I know that was quick, but it’s too late to rethink my use of the word saga, so what are you going to do?  I wrote a piece about antidepressants around a month ago, which would be worth reading if you haven’t already.  After 15 years on one pill of another, I decided to give them the push, and see how life was without them. After the initial withdrawal symptoms, I felt fantastic!  I had more energy, I wanted to do things, and talk to people and I felt amazing.  My sex drive came back and I’m not embarrassed […]

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Husband as caregiver

My husband is first and foremost my husband, but also my carer, caregiver, personal assistant ad infinitum.  Actually, when I introduce him to people and clarify his role, it is usually as “ma bitch”. He does shit for me. He does the shit for me that I can’t do. He helps me with the chronic illness stuff and he gets me out in the world, something which I am no longer able to do on my own. *Everything* I have read about being a caregiver is depressing.  Maybe I’m not reading the right stuff, I don’t know.  This article by […]

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#EDSchat twitter chat ~ Monday 7th November

#EDSchat is a new chat to twitter and has been created for people with EDS (Ehlers-Danlos syndrome) and other connective tissue disorders. Whether you have had a formal diagnosis, are self diagnosed or believe that you may have symptoms of EDS, you are very welcome to come along and share ideas with others like you. Similarly, if you have any conditions that greatly overlap with the symptoms of EDS we would love to have you. Even if you have a friend or family member who has EDS, and you would like to learn more, please feel free to join us. […]

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PTSD Live!

Trigger warning: Rape, suicide  *GRAPHIC* I don’t want to remember, remember… For me, this is the most terrifying night of the year.  For anyone who hasn’t read my recent fireworks post, it might be a good idea to do that first, unless you’re here for the juicy stuff. I was raped.  Like so many other women I have spoken to, I’ve had the experience of having my skirt pulled up and rough hands pushed inside me against my will. I was drunk and he was friendly, at first.  I was 13, and out in a short dress.  Asking for it […]

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You’re Too Fat, It’s Time To Lose Weight

 I’ve always been ‘big’. Even as a size 12 (which used to be a goal, and is now considered huge) bulimic 14 year old, who would pass out at school because she hadn’t eaten; was embarrassed to be seen eating (another story for another day). I was called fat, and all the other permutations of what I then believed to be a slur.  Fat it not a slur, it is a descriptor.  I am fat.  I have fat.  I have friends and we are fat.  Call me fat 20 years later and I’ll say, “yeah, no shit”!  I am proud […]

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